The Chandigarh administration has decided to declare haemophilia a chronic disease and has framed a policy for treatment.
Submitting an affidavit before the Punjab and Haryana high court Government Medical College and Hospital (GMCH), Sector 32, director principal Dr Atul Sachdev said that the hospital had been made the nodal agency. The submission was made during the resumed hearing of a public interest litigation (PIL), seeking the review of policy to provide treatment to haemophilia patients.
Two Non-government Organisations (NGOs) Haemophilia Advocacy Society and Society for Hemophilia Care had filed the PIL.
Sachdev told the court that considering the high cost of the treatment, the UT administration had decided that any patient earning less than `6,000 per month would be entitled to free treatment as against the earlier limit of `3,000. The UT has also written to the union health and family welfare department to allocate funds for administering free treatment to the patients.
The PIL had pointed out that Punjab also does not have any policy for treatment of the patients and demanding that
anti-haemophillic factor technique be used in the state, adding that there were about 3,000 patients in Punjab, suffering from haemophilia and in many state hospitals the treatment was not available.
The petitioners also demanded that a policy followed by Haryana in 2012 be implemented in Punjab.
The petitioners also sought that free treatment be provided to people with haemophillia, who develop complications and infections due to lack of proper treatment.
What is Haemophilia?
Hemophilia is a group of hereditary genetic disorders that impair the body's ability to control blood clotting. In the disease there aren't as many clotting factors as there should be in the blood, meaning that someone with the condition bleeds for longer than usual. People with severe haemophilia experience internal bleeding. This usually occurs around the joints and muscles, causing pain and stiffness. It can also lead to joint damage over time.