The Post Graduate Institute of Medical Education and Research (PGIMER) held a meeting for children with primary immunodeficiency disorders (PIDs) and their families at the Advanced Paediatrics Centre in PGIMER, Chandigarh on Wednesday.
This gave an opportunity to the patients and their families to interact with each other, with the doctors and philanthropists who have been supporting the medical treatment of these patients since long.
According to experts, PIDs are conditions in which part of the body’s immune system does not function properly. These disorders are inherited conditions and those suffering from it get recurrent infections in the for m of repeated pneumonia, diarrhoea, skin and soft tissue infections.
It is said that in most developing countries , such disorders go unrecognised due to lack of awareness both among medical frater nity as well as the public. However, of late, an increasing number of children have been identified with this disorder at PGIMER and currently more than 300 children are being followed up at the Immune Deficiency Clinic here.
Many of the children, who have antibody deficiencies need monthly replace-ment with Intravenous Immunologlobulin (IVIg). It is an expensive and lifelong treatment and in relatively more serious PIDs, the only curative therapy is bone marrow transplantation.
Also honored during the press meet were donors and philanthropists who have come forward in the last few years to help these children. KD Arora ( IASretd ) of Kusum Arora Memorial Trust, Shalini Mehta of God’s Child Foundation, Vivek Kapoor and members of Pediatric Medical Support Society, Gurshabnam Kaur and members from Sukhmani Fo undation , Dr J Chattwal and members from Veerawali Foundation Nanhi Jaan, Milkha Singh, Air Marshal ( Retd ) R S Bedi , Dr Sneh Harshinder Sharma , Vishnu Sharma, Siddharth Chaudhary, Punita Sethi, Sudhir Anand, and Harbhajan Kaur have contributed rather generously for the wellbeing of these children and their families. However, with the ever increasing cost of therapy more help is needed for these patients.