Adityakumar Yadav, 7, loves to play and run around. However, he slipped from a staircase in his school, and fractured his left leg for the seventh time.
The Chattisgarh boy suffers from Osteogenesis Imperfecta, a rare genetic bone disorder that leaves children with fragile bones prone to fractures at the slightest friction. Last week, he underwent an operation at Bombay Hospital to fit a rod in his left leg to prevent frequent fractures.
“Although Aditya started getting fractures when he was barely two, we detected the disorder much later. We were told that he would get better after he turns 15,” said his father RD Yadav.
“Children with this condition live a very constricted life; they cannot play or move like their friends. In extreme cases, internal bleeding and fractures of ribs may be fatal. We get about four to five cases per year,” said Dr Atul Bhaskar, the orthopedic surgeon who operated on Aditya.
“We used an indigenously manufactured special telescoping rod, which will increase in length as the child grows,” said Dr Bhaskar. Drugs and rods have been made available only in the last few years, said doctors.
“Children need to be monitored every three to six months,” said Dr Rujuta Mehta, head of the pediatric orthopedics department at Wadia Hospital.