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HindustanTimes Wed,27 Aug 2014

Thalassaemia Walk reaches Bathinda

Ashpuneet Kaur Sandhu  Bathinda, February 18, 2014
First Published: 23:22 IST(18/2/2014) | Last Updated: 23:28 IST(18/2/2014)

A mission to create awareness on thalassaemia by Kotkapura resident Sukh Brar in the form of walk reached Bathinda's Government Rajindra College on Tuesday.

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Sukh Brar's 'Thalassemia Walk' was inspired by discriminatory treatment to her thalassemic friend Disha Sethi and began on January 10. She along with some of other friends is covering all parts of the state and wants to create awareness about the disease. She has already covered more than 1,200-km on foot.

Sharing her experience, she said, "I was targeting youth and teachers because they are best medium to spread awareness and I am very happy at the unexpected response."

She added that she saw a child die due to the disease at an Amritsar hospital and probably thought that had her drive started a year ago, the child could have been saved. She also met health minister Surjit Kumar Jyani during the course of her visit. "He has assured us that a project would be started soon, where the public could easily donate blood."

"I have demanded compulsory blood tests before marriage, so that preventive steps could be taken if the disease is detected." A mountaineer from Himachal Pradesh, Saurabh is accompanying her on the journey.  Disha Sethi, the inspiration behind the walk, said: "I am happy that Sukh is doing something for thalassaemics. Every 15 days, I have to transfuse blood at a cost of Rs. 1,700. I also take six capsules a day. Finding a donor every 15 days is also a problem." She added that discrimination against these patients must end.

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