‘My daughter’s transplant led to complications; I need Rs. 25 lakh more’
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‘My daughter’s transplant led to complications; I need Rs. 25 lakh more’

Mother of 3.5-year-old seeks funds to cover the steep cost of her treatment. Read on to know how your contribution can make a significant difference to their lives.

brand stories Updated: Jun 07, 2018 10:53 IST
Ishwari, who has developed an infection called the Graft Versus Host Disease.(Ketto)

Holding up her fingers, my 3.5-year-old daughter Ishwari often asked me, “Aai, if I have five apples and three fall off, how many am I left with?” When I would mischievously scream “four”, she would burst into laughter and say, “Aai, you always get it wrong! It’s two!”

Ishu has never got a chance to go to school. While she’s very sharp, she is also extremely weak. Her weight is low, height is less, and the structure of her head is small compared to other children her age.

Last year, we found out that the cause of this is an ailment called Fanconi anaemia. It’s a condition that affects the body’s ability to produce blood cells. If not cured, the production of blood can stop completely. The doctors said that because my daughter was at a higher stage of this ailment, the only solution we had was a bone marrow transplant. But what came with this solution was an amount that a simple family like ours had never dreamt of—a staggering Rs. 25 lakh.

With the support of our relatives, well-wishers, and our first fundraiser on Ketto, we, however, managed to procure the money. The transplantation (haplo BMT) happened on February 24, and was a success.

Ishwari with her father. (Ketto)

But little did we know that the real battle had just begun. Only a day later, Ishu developed an infection called the Graft Versus Host Disease. This infection has been attacking every organ of her body—it started with her skin, but has now spread to her liver and kidney as well.

We now need an additional Rs. 25 lakh for her supportive treatment and post-treatment care. Our total bill has crossed an unaffordable Rs. 52 lakh.

In the last three months, Ishwari has been shifted to the Postnatal Intensive Care Unit for her alarming blood pressure levels; she has also survived three severe brain hemorrhages. Every time she shows progress and the doctors clear us for a discharge, the infection somehow goes out of control. After meeting with disappointment three times, we’ve stopped telling Ishwari about these details.

Circumstances forced us to take a loan worth Rs. 13 lakh for my mother-in-law’s operation, sister-in-law’s wedding, and my brother-in-law’s education. And, last year, Ishu’s treatment cost us Rs. 1 lakh. In the process, we ended up exhausting our emergency fund, and when that wasn’t enough, we ran to all our relatives and friends for help. Now, we don’t know what to do.

Ishu is going to turn 4 on June 6. She can’t eat cakes or sweets, so we’ve decided to cut a cake for the hospital employees, who have been extremely kind to us. Ishu’s biggest gift would be her regular old life. All we want is to take her home. I want to request the generous people on the internet to help us out, again.

You can help Nutan by donating to her fundraiser on Ketto here.

First Published: Jun 05, 2018 11:49 IST