rare disease

The government will take initiative to create alternative funding mechanism through setting up a digital platform, the minister said.

Voluntary crowdfunding for rare disease treatment was okayed by Centre: LS told

By hindustantimes.com | Written by Poulomi Ghosh
PUBLISHED ON JUL 23, 2021 03:40 PM IST
Under the policy, the Centre provides financial support up to 20 lakhs for treatment of those rare diseases that require a one-time treatment, minister of state Dr Bharati Pravin Pawar informed the Lok Sabha.
(HT Illustration / Shrikrishna Patkar)
(HT Illustration / Shrikrishna Patkar)

Diseases so rare, even doctors don’t know of them

Hindustan Times | By Sanchita Sharma
UPDATED ON APR 12, 2018 08:17 PM IST
Whether it’s Stephen Hawking’s neurodegenerative condition or myasthenia gravis, a big part of the trauma of having a rare disease is finding the right doctor, and diagnosis.
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