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spinal muscular atrophy

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Toddler with rare genetic disorder gets 16 cr injection free from US firm

The toddler is the first patient of Spinal Muscular Atrophy (SMA) from India to get Zolgensma, a gene replacement therapy, through a lottery.
The toddler got the <span class='webrupee'>₹</span>16 crore life-saving injection known as the most expensive drug in history.(Representative Photo)
The toddler got the 16 crore life-saving injection known as the most expensive drug in history.(Representative Photo)
Published on Aug 03, 2021 06:31 AM IST
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By hindustantimes.com | Written by Meenakshi Ray

News updates from HT: Chhattisgarh Police books suspended officer for sedition

  • Here are today’s top news, analysis, and opinion. Know all about the latest news and other news updates from Hindustan Times.
The Chhattisgarh Police have booked suspended IPS officer GP Singh for sedition citing documents “promoting enmity” and “conspiracy against the government” allegedly recovered in the raids at his premises last week.(Representative image/PTI)
The Chhattisgarh Police have booked suspended IPS officer GP Singh for sedition citing documents “promoting enmity” and “conspiracy against the government” allegedly recovered in the raids at his premises last week.(Representative image/PTI)
Published on Jul 09, 2021 01:07 PM IST
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By hindustantimes.com, Hindustan Times, New Delhi

Pinarayi Vijayan urges PM Modi to waive off tax on life-saving drug for infant

  • The infant’s family from Kerala’s Kannur district was able to afford the medicine, which costs a whopping 18 crore, through an online crowdfunding initiative.
18-month-old Muhammad, whose 15-year-old sister also suffers from Spinal Muscular Atrophy, will have to be administered the medicine before he attains the age of two. (HT photo)
18-month-old Muhammad, whose 15-year-old sister also suffers from Spinal Muscular Atrophy, will have to be administered the medicine before he attains the age of two. (HT photo)
Published on Jul 09, 2021 12:34 PM IST
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By hindustantimes.com | Written by Ayshee Bhaduri | Edited by Avik Roy, Hindustan Times, New Delhi

Crowdfunding raises 18 crore to treat Kerala child with rare genetic disorder

  • The child’s 15-year-old sister, Afra, also has the same disorder and is paralysed due to delay in diagnosis and treatment.
Doctors at MIMS Hospital in Kozhikode, who are treating Mohammed said that his genetic disorder can be treated if the medicine is administered before he turns two.(HT Archive)
Doctors at MIMS Hospital in Kozhikode, who are treating Mohammed said that his genetic disorder can be treated if the medicine is administered before he turns two.(HT Archive)
Updated on Jul 06, 2021 05:02 PM IST
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By hindustantimes.com | Written by Sharangee Dutta | Edited by Meenakshi Ray

Children with spinal muscular atrophy should start treatment earlier

Spinal muscular atrophy (SMA) is a genetic disease that affects motor neurons in the spinal cord, resulting in muscle atrophy and widespread weakness that eventually impairs swallowing and breathing.
SMA is caused by mutations in the survival motor neuron (SMN) 1 gene, which codes for survival motor neuron protein.(Shutterstock)
SMA is caused by mutations in the survival motor neuron (SMN) 1 gene, which codes for survival motor neuron protein.(Shutterstock)
Updated on Jul 17, 2018 10:42 AM IST
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Asian News International | By Asian News International, Washington D.c.
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Saturday, October 16, 2021