spinal muscular atrophy]
The toddler is the first patient of Spinal Muscular Atrophy (SMA) from India to get Zolgensma, a gene replacement therapy, through a lottery.
Published on Aug 03, 2021 06:31 AM IST
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Published on Jul 09, 2021 01:07 PM IST
By hindustantimes.com, Hindustan Times, New Delhi
- The infant’s family from Kerala’s Kannur district was able to afford the medicine, which costs a whopping ₹18 crore, through an online crowdfunding initiative.
Published on Jul 09, 2021 12:34 PM IST
By hindustantimes.com | Written by Ayshee Bhaduri | Edited by Avik Roy, Hindustan Times, New Delhi
- The child’s 15-year-old sister, Afra, also has the same disorder and is paralysed due to delay in diagnosis and treatment.
Updated on Jul 06, 2021 05:02 PM IST
By hindustantimes.com | Written by Sharangee Dutta | Edited by Meenakshi Ray
Spinal muscular atrophy (SMA) is a genetic disease that affects motor neurons in the spinal cord, resulting in muscle atrophy and widespread weakness that eventually impairs swallowing and breathing.
Updated on Jul 17, 2018 10:42 AM IST
Asian News International | By Asian News International, Washington D.c.