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Stigma, apathy, fatalism: The battle against sickle cell anaemia

Sickle cell disease (SCD) is a blood disorder where the red blood cells, usually disc-shaped and flexible enough to travel through blood vessels.

Updated on: Aug 29, 2023, 01:21:33 IST
By , , SIHAWA (CHHATTISGARH)/ BHOPAL
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Chandrika Ganesh, 25, is always tired. And in pain. The kind of pain, she says, that makes a human being want to curl up and die. It begins in one joint, then spreads like a wildfire through her body. For a while, she hoped against hope, and told herself it was nothing. She was pregnant when the pain first arrived. Perhaps it was a mother’s rite of passage, she thought.

PREMIUMOn July 1, PM Modi launched the National Sickle Cell Anaemia Elimination Mission (NSCEM) in Shahdol in Madhya Pradesh. (file)
On July 1, PM Modi launched the National Sickle Cell Anaemia Elimination Mission (NSCEM) in Shahdol in Madhya Pradesh. (file)

Also Read | Impact of sickle cell disease on pregnancy

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ABOUT THE AUTHOR
Ritesh Mishra

Ritesh Mishra is the State Correspondent for Chhattisgarh with Hindustan Times. He reports on Maoism, internal security, politics, mining, governance, and major developments shaping the state. Based in Raipur, he has covered Chhattisgarh since 2016, reporting extensively from the Bastar region and other conflict-affected areas. With nearly two decades of experience in journalism, Ritesh has built a reputation for ground reporting from some of India's most challenging terrains. His coverage spans Left-Wing Extremism, counter-insurgency operations, elections, tribal affairs, environmental issues, infrastructure, mining, and socio-economic developments. He has reported on major security operations, policy initiatives, wildlife crime, and the changing dynamics of conflict and development in Central India. Before moving to Chhattisgarh, Ritesh spent eight years reporting from Madhya Pradesh, covering politics, administration, crime, development, and social issues. Throughout his career, he has reported on various forms of extremism in Central India, combining field reporting with in-depth analysis to produce accurate, balanced, and impactful journalism. Prior to joining Hindustan Times, Ritesh worked with The Pioneer and The Free Press Journal, where he covered a wide range of beats and honed his skills in political, investigative, and field reporting. His reporting is marked by exclusive stories, extensive fieldwork, and a commitment to factual, on-the-ground journalism that brings complex issues to a wider audience.

ABOUT THE AUTHOR
Shruti Tomar

I have spent over a decade chronicling Madhya Pradesh’s political and social landscape, covering politics, investigative journalism, crime, human interest, and government policy, blending sharp insight with ground‑level depth. I have closely tracked three assembly elections, three Lok Sabha elections, leadership transitions in MP while exposing governance lapses, tender irregularities, and flawed policy rollouts. My reports have revealed gaps in the Cheetah project, irregularities in medical education, rigging in recruitment exams, and loopholes in policy implementation. In crime reporting, I have moved beyond FIRs to map systemic patterns — from organised crime networks and gender‑based violence to custodial accountability — balancing urgency with sensitivity. My journalism is defined by a commitment to human interest. I have profiled the marginalised Bancchda community, documented atrocities against tribal groups, and highlighted efforts to preserve their culture through heritage liquor and revival of spiritual practices. I have reported on farmers struggling with failed MSP promises, giving voice to those often reduced to statistics in policy files. Passionate about field reporting, I have reported on rampant sand mining in Chambal and Narmada, pharmaceutical companies supplying medicines under altered names, the dire condition of schools and colleges, the plight of commercial sex workers, and skewed sex ratios in specific districts. Beyond deadlines, and as HT’s state correspondent and assistant editor in Madhya Pradesh, I engage with ministers, farmers, students, and activists, believing the best policy stories begin with a single human voice. A postgraduate in Journalism and Mass Communication, I also hold a diploma in sports journalism.

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