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Odisha couple forced to perform symbolic last rites of son with rare disorder

The boy suffers from giant congenital melanocytic nevi that caused hairy growth on his face, chest and right hand

Published on: Jan 28, 2021, 10:15:08 IST
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An ostracised couple in Odisha’s Ganjam district was forced to perform symbolic last rites of their seven-year-old son, who is suffering from an immunological disorder, as their neighbours consider the child a bad omen.

The couple were forced to organise a community feast as well. (Representational Image)
The couple were forced to organise a community feast as well. (Representational Image)

The boy suffers from giant congenital melanocytic nevi that caused hairy growth on his face, chest and right hand. He developed wounds all over his body after he underwent surgery in 2018. After the child was discharged following fresh hospitalisation on December 29, the neighbours asked the parents to conduct the symbolic last rites.

“After we came back, the villagers tonsured him under a tree. They said my child would bring bad luck to the village. Then a symbolic ritual was conducted like it is done when someone dies,” said the child’s mother, Mamata Nayak.

His father, Ram Chandra Nayak, said he was asked not to touch him and keep him under a tree. “I was asked by the villagers to host a community feast as part of the ritual. As I had no money, I borrowed 10,000 to host the feast. Only after that, the villagers allowed me to keep him at home.”

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Paediatrician Alekh Pradhan, who treated the boy, said he suffers from immunological deficiencies. “There were maggots on his head and there were abscesses in his body filled with pus. I could bring his infection under control. But he needs proper treatment, and it can be done in hospitals like AIIMS [All India Institute of Medical Sciences].”

Ganjam district collector Vijay Amrita Kulange they have sanctioned 10,000 for the boy’s treatment. “The sub-collector advised him to apply for assistance from CMRF [Chief Minister’s Relief] Fund.” Kulange said the father did not complain about ostracisation or purification ritual.

“I have instructed the Tahasildar and inspector of the local police station to inquire and report.”

  • Debabrata Mohanty
    ABOUT THE AUTHOR
    Debabrata Mohanty

    Debabrata Mohanty is a senior assistant editor of Hindustan Times who works as state correspondent from Odisha covering the state's politics, governance, public policy, natural disasters, environment and its society for close to three decades. With his long years of reporting from the state capital of Bhubaneswar, Mohanty has been known as one of the most experienced and credible journalists covering Odisha for the national English dailies. His reporting combines on-ground detail with deep institutional knowledge detailing the state's changing politics, governance issues, administrative reforms and the functioning of its public institutions. He has regularly reported on issues ranging from legislative developments and public policy implementation. Politics is his core areas of expertise as he closely tracks Odisha's political landscape, including the rise and transformation of the Bharatiya Janata Party (BJP), the Biju Janata Dal (BJD), the two principal political parties in Odisha. His long association with the state's political establishment enables him to write on contemporary developments in a larger political context. Mohanty takes a deep interest in writing human interest stories, environmental issues and documenting the impact of cyclones, floods, heatwaves, and other climate-related events in one of the most disaster-prone states. His coverage extends to public health, governance reforms and stories on accountability of government institutions. Before joining Hindustan Times, Mohanty worked with The Indian Express, Mail Today, and The Telegraph, where he covered at least six general elections and as many assembly elections. In 2007, he was selected for the prestigious Chevening Young Indian Print Journalist Programme at the University of Lincoln, United Kingdom, where he received advanced training in print journalism. In 2009 he won the Press Institute of India-International Committee of Red Cross award on conflict reporting for his on-ground reportage of 2008 Kandhamal riots.Read More

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